The Freestyle Libre was the best medical advice I got from my diabetes nurse, Bonnie. She pushed me to try many things to help me with the tracking of the blood sugars, so without her help and her guidance to the Freestyle Libre, I probably wouldn't be here today telling you my story.
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The CGM would be absolutely wonderful, so that you can go out and walk or cycle without having to check your blood sugars while on the go.
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CGM is completely free here in Norway, and I am waiting for a similar thing in New Zealand to become available before I move back home.
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I sleep better with the CGM - if I don’t have one the worry will keep me awake, not the blood sugars.
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The first thing I do when I get an invoice paid is purchase more sensors. I prioritise that cost before rent, before petrol, before groceries.
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Glucose monitors shouldn’t need to be the ambulance at the bottom of the cliff. Having blood sugar results constantly, without finger pricks, would pay off hugely for the national cost of healthcare support throughout our lives and particularly in our later years.
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I'm a full-time student and I can't afford a CGM. I can't even afford to cover my tuition fees on my own or buy a house. I have lived with this illness for more than twenty years and all I want is access to technology that will lessen the burden, even just a little bit.
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This means that I have had diabetes for at least 27 years and over that time would have used 39,312 Caresens test strips – not allowing for the occasions when the tests had to be aborted and / or reconfirmed because I did not believe the result.
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With the CGM, I am able to have freedom in the activities I do, and the foods that I eat. I am able to sleep through the night and only wake up to my crying baby instead of having to wake up to prick my finger at 3am.
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Not being able to afford this meter is very frustrating and I strongly believe it’s very important that the CGMs are fully funded for ALL of our population that have Type 1 and 2 diabetes.
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Diabetes was not going to stop our girl from rowing, so learning how to control diabetes but then adding into it the highly intensive exercise that you need to do as a rower was tough. Three out of four girls in her quad have Type 1.
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There are parents putting their kids to bed, not knowing if they will be alive the next day or getting up several times a night to test them to be sure and that is exhausting whilst trying to hold down a job.
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Moving to a FGM at my own cost 8 years ago (which is not cheap) has given me significant control of my life and my diabetes again. It has also helped reduce kidney and eye damage with the better control!
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I’ve been living with diabetes for more than 13 years, and it’s only been in the past 6 months with regular use of my CGM and additional connectivity that I’ve finally managed to get my levels under control.
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The CGM costs money, money I’m not gonna have all the time. I have plans to go to university… I won’t be able to keep paying for the sensors. I don’t want to have to choose between growing up and living independently or having a good quality of life.
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With two in our family, we spend a lot of money every month on what's not covered currently, but it’s absolutely something we would not be without.
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The CGM has been a life-changing development - I no longer clog up the hospital's ED or wards, I enjoy an independence that would have been improbable without CGM, and friends and family have no reason for concern.
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