Team sports have always been central for rising rugby star Layla Sae. Her type 1 diabetes is something she manages on the side – her ‘normal’.
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In writing about her twin journeys – with type 1 diabetes and kidney disease – Ana Hutchins inspires and encourages others, and releases some of the burden for herself.
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Liam Fryer, seven, from Dunedin, received a Jerry the Bear learning pack as part of our programme for children 4–10 years old living with T1D.
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Leigh Sharland had a gut feeling about what was affecting her daughter Macie, but the GP wouldn’t listen. Two years on, Leigh recalls the frustration.
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Diabetes NZ’s Brave Bear pack for children has been flying off the shelves since it was launched in November. Cassy Hay, and her daughter Zanthia, 4, from Katikati, explain how it’s been helping them learn about diabetes.
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Twelve-year-old Sophia Shearman couldn’t believe it when she won our competition to design a sensor patch.
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The CGM would be absolutely wonderful, so that you can go out and walk or cycle without having to check your blood sugars while on the go.
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CGM is completely free here in Norway, and I am waiting for a similar thing in New Zealand to become available before I move back home.
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I sleep better with the CGM - if I don’t have one the worry will keep me awake, not the blood sugars.
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The first thing I do when I get an invoice paid is purchase more sensors. I prioritise that cost before rent, before petrol, before groceries.
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Glucose monitors shouldn’t need to be the ambulance at the bottom of the cliff. Having blood sugar results constantly, without finger pricks, would pay off hugely for the national cost of healthcare support throughout our lives and particularly in our later years.
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I'm a full-time student and I can't afford a CGM. I can't even afford to cover my tuition fees on my own or buy a house. I have lived with this illness for more than twenty years and all I want is access to technology that will lessen the burden, even just a little bit.
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With the CGM, I am able to have freedom in the activities I do, and the foods that I eat. I am able to sleep through the night and only wake up to my crying baby instead of having to wake up to prick my finger at 3am.
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Not being able to afford this meter is very frustrating and I strongly believe it’s very important that the CGMs are fully funded for ALL of our population that have Type 1 and 2 diabetes.
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Diabetes was not going to stop our girl from rowing, so learning how to control diabetes but then adding into it the highly intensive exercise that you need to do as a rower was tough. Three out of four girls in her quad have Type 1.
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There are parents putting their kids to bed, not knowing if they will be alive the next day or getting up several times a night to test them to be sure and that is exhausting whilst trying to hold down a job.
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Moving to a FGM at my own cost 8 years ago (which is not cheap) has given me significant control of my life and my diabetes again. It has also helped reduce kidney and eye damage with the better control!
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I’ve been living with diabetes for more than 13 years, and it’s only been in the past 6 months with regular use of my CGM and additional connectivity that I’ve finally managed to get my levels under control.
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